Tuesday, December 26, 2017
The days leading up to Christmas were festive, exciting and in many ways eye opening. Not only do we gather toys and raise funds for local non-profit charitable organizations (see the list at the end of this post) on my annual toy drive we also raise awareness of those in need. One very special organization Cure CMT4J is in a race to find a treatment and cure for an illness that fewer than twenty-three people in the world have been identified with– a form of Charcot-Marie-Tooth disease (CMT).
Talia Duff, a 12 year old girl from Ipswich, has CMT Type 4J this extremely rare neuro-degenerative disease can cause progressive and profound muscle weakness leading to paralysis. Today, there is no known cure or treatment - - but that can change.
Talia’s parents have been working tirelessly to find, fund, and empower a world-class research team of doctors and investigators to better understand the genetic mutation.
You can support Talia and the researchers by visiting this link and donating - https://donate.curecmt4j.org/
Pathways for Children
Family and Children's Service of Greater Lynn
Neighbors in Need
Bates Elementary School of Salem